On 31 December 2011 at a family braai at our farm in Ellisras. Pippie (2 and a half years old) was playing outside while her father started the fires for the braai, he used a fire lighter gel which exploded in his hands and with the backlash of the explosion all the gel landed on Pippie who was a few meters away from her father. I got outside after hearing the sounds and her father screaming and I saw her skin boiling on her body (you can’t see the flames as it burns at an extreme heat). We managed to kill the flames in what felt like forever and we rushed to the Private hospital where the doctor on standby could not be reached. After rushed to the government hospital where the paramedics started to help us and, in an effort, to get doctors to help, we finally got hold of one and he rushed through. Pippie was totally conscious and lived every second of the nightmare. I didn’t understand everyone’s panic yet. After hours of struggling to find a suitable hospital garden city accepted us. She got hurt at 18:36(will never forget the time) and we only arrived to Johannesburg after 02:30 the next day. That night doctor Miles Bartlett told us she has less than 3% chance to survive and I still did not understand until they finally allowed me to see her. She was swollen 3 times her original size. Drips and ventilators and machines and everyone on 24hour standby not leaving her for a second as she crashed for the first time and had to be on a ventilator to breath.
The diagnoses we got the day after was worst that hearing she only had 3% chance to survive. She had 85% plus third-degree full thickness burn wounds (only parts that was not burned was her bum, privates and a foot). And that she will not survive the next 24 hours and we just need to make her comfortable. The next day was the first operation because her wounds were getting infected and her fluid loss and all her organs was starting to get damaged due to shock and what her body went through. They could not do more than her hands at that stage and she bled so much she needed blood transfers for just opening her hands. That was the beginning of her journey 10 years ago. She had no skin to cover her body not even as a graft site and other options would not have worked as she kept rejecting so we cloned her skin and her journey in ICU was 185 days and more than 18 months in and out patient at Rehab. In her hospital stay she had 5 heart attacks, 5 strokes, 2 lung collapses, total kidney failure and dialysis, severe sepsis on multiple occasions and many more episodes. But she made it.
Up until today she has undergone 60 full operations and will need many more in the years to come, due to her skin she will have a lot of operations to help her grow normally, she also gets Botox injections for her muscles as she is left brain damaged after the lack of oxygen and the 5 strokes. Her equipment is always in need of upgrading as she is still growing and her daily needs as nappies and diet and medication is a constant in her life. She cannot sit by herself or walk or do any of the basic things everyone can do. But that never stops her from fighting.
In 2016 we took her to America to the family Hope Center and the improvement was incredible, and we are still working on her program now but it desperately needs updating as we need to do this yearly but have not been able to as yet.
Funds for Pippie would ensure her to go back to America to see the therapist and specialist there and we can continue on her program. Because I have not been there in 5 years, I would like to do the course again to see what else they are offering my child as well as a full evaluation. Is about a 10-day trip.
Family Hope Center Course: R15 000
Family Hope Center Evaluation: R80 000
Flights/Visa/Passports etc. R40 000
Accommodation/Meals/Costs R30 000
Extra Equipment Etc. is based on what they advise and on our previous trip it was over R30 000
We are trying to raise R200 000 for that cause.
- Any other funds raised will be in aid for her next operations she will need, including Botox and skin release procedures as well as hip release and other future medical needs as well as travels to Johannesburg to be with her doctors and original team. This will be ongoing and there is no exact amount I can write on this as this will be for the rest of her life.
- Any other funding will go for her equipment, dietary needs, supplements and medications as well as nappies and the clothes she wears as her skin is too sensitive for normal clothes.
- She does have expenses for therapies and therapists at the moment and in the future we would love for her to have someone to help her out on a daily basis with all her exercises and needs.
She does have an ongoing back a buddy account as well for reference.
Thank you for taking interest in our cause.
Anice and Pippie.